Kade's story
On March 17th our lives were changed and turned upside down. Our little Kade had a fall which lead to brain surgery, which then lead to finding a very large brain tumor. They were able to remove the tumor successfully with surgery and she has been recovering better than expected, however the pathology report came back as malignant. She was diagnosed with choroid plexus carcinoma brain cancer. This blog will be for everyone to track our journey through out the treatment process. We are so hopeful for our little girl and know she's a little fighter.
My beautiful girl
Sunday, March 30, 2014
There's no place like home.
We are enjoying every second of being home. It's so nice to have some normalcy for a bit. Kade is doing so much better being in her element at home. She's still very weak but is starting to get her appetite back and laugh and smile at us. She crawled to me yesterday which is huge! We tried to get her to stand and walk again which she took a few steps with help but is really weak. She's doing so good! It's nice to have my baby back! The other kids are also loving being home as a family again.
Thursday, March 27, 2014
New Diagnosis...
Sorry to confuse everyone again as I move from Facebook to a blog. This will be a lot easier to navigate since this is going to a lot longer road for us than anticipated. With this diagnosis of Cancer we are in a whole new ballgame. Here is the latest, as soon as Kade recovers from this major brain surgery she had about a week ago, she will then start chemotherapy here in the oncology ward at Seattle Children's. The chemo process will be about a 6 month period with 6 total treatments. She will be admitted for 4-5 days each treatment then be able to come home for 3-4 weeks in between. We, along with the oncologists are hopeful that she will have a full recovery.
Right now Kade is recovering remarkably well from her surgery. She is sensitive to a lot of stimulation and noise as she is still in a lot of pain. The doctors are hoping to take her CSF (cerebral spinal fluid) drain out tonight as her body is handling the absorption well. She had another MRI this morning determining that things are looking good. This means we might be able to go home tomorrow or Saturday depending on how she is handling things without her drain. Then we will come back sometime late next week to start the chemo process. That will be another post since there is SO much information and we are kind of on overload. Right now we are trying to focus on things one step at a time.
Kade is giving her little stink eye to some of the nurses and pushes their hands away, which shows some of her feisty little personality. It's nice to see and the doctors are encouraged by her attitude as well. The oncologist said she is just the type that beats this because she's been so resilient with recovery.
We are heartbroken and a little shocked by the news but are taking things daily as they come and trying to keep a positive outlook as that will be the best thing we can give her right now. No doubt she still has many angels watching out for her and we still feel we have seen so many miracles throughout this past week.
We are still so grateful and impressed by her care given at Children's, with the oncology team now taking over, everyone is amazing. We are glad to be where we are as this is the best place possible for her.
We feel inadequate but also very appreciative of all the meals, letters, care packages, phone calls, donations, notes, and prayers offered on her behalf. Please keep the prayers coming as we will definitely need them in the coming months.
Right now Kade is recovering remarkably well from her surgery. She is sensitive to a lot of stimulation and noise as she is still in a lot of pain. The doctors are hoping to take her CSF (cerebral spinal fluid) drain out tonight as her body is handling the absorption well. She had another MRI this morning determining that things are looking good. This means we might be able to go home tomorrow or Saturday depending on how she is handling things without her drain. Then we will come back sometime late next week to start the chemo process. That will be another post since there is SO much information and we are kind of on overload. Right now we are trying to focus on things one step at a time.
Kade is giving her little stink eye to some of the nurses and pushes their hands away, which shows some of her feisty little personality. It's nice to see and the doctors are encouraged by her attitude as well. The oncologist said she is just the type that beats this because she's been so resilient with recovery.
We are heartbroken and a little shocked by the news but are taking things daily as they come and trying to keep a positive outlook as that will be the best thing we can give her right now. No doubt she still has many angels watching out for her and we still feel we have seen so many miracles throughout this past week.
We are still so grateful and impressed by her care given at Children's, with the oncology team now taking over, everyone is amazing. We are glad to be where we are as this is the best place possible for her.
We feel inadequate but also very appreciative of all the meals, letters, care packages, phone calls, donations, notes, and prayers offered on her behalf. Please keep the prayers coming as we will definitely need them in the coming months.
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