So close to dodging a bullet...

We were so close! I thought we were actually gonna dodge a bullet this time around and not have to be admitted again for fevers but I was wrong. Here we are in the hospital again for fevers.

Kade has had a pretty good week with her reaction to the chemo last weekend. I kept waiting since Friday night for her to get sick because that is her trend but she never really got bad. She wasn't throwing up a lot and her fevers were low grade, but I could tell she was just punky and not feeling well so after putting it off for two days of very mild symptoms I finally decided to bring her in late last night. It's a good thing I did too because her blood cultures came back positive today and she has a central line infection in one of her lumens. This means she has to be on a another strong IV antibiotic for 14 days. We will probably be able to do it ourselves at home like we did with the ganciclovir though. The doc said most kids get at least one line infection throughout their treatments and it could have been because of  anything.

Kades still been a sweet happy girl despite her feeling under the weather. I don't think she is very happy to be in the hospital, but she is a trooper. We sent Maizyn and Jax to Jackson Hole, Wyoming with my parents for a Glauser family reunion this morning. There will be 99 people thre and they go meet all my cousins. I'm so sad to miss it but glad they get to go. It turned out to be good timing as far as them being gone while we are into the hospital again.





Here she is playing with the box of tissues.

Every. Single. Tissue. She then proceeded to throw them on the floor. I glad she is entertaining herself though! Whatever makes her happy. Silly girl.
Wish us luck for the rest of our stay!

Round 5

Well, We are already home from the hospital! This 5th round of chemo went very well so far. We were only admitted for two days then they trusted us to come home and continue her care here,which include the 4 baths, 4 linen changes, diaper change every 2 hours, and dressing change daily. This only lasts until tomorrow though, then it's just her normal meds and as needed nausea meds. Not too bad. She is doing great so far! No throwing up, a little under the weather as far as being lethargic, but she's picked up right back where she left off and I can't help but think it's because of all the sincere prayers on her behalf. Her counts have not dipped yet, that will most likely happen this weekend and the we'll see if she gets worse, but so far so good and I will take it! She will get her nulasta shot and stem cell rescue tomorrow in the outpatient clinic, which makes her smell awful for a few days... Think creamed corn times 10. But it will help her recover quicker when her counts go down.

Kade's MRI scan came back clear last week as well as her hearing test! All positive news from there. I'm so grateful and have definitely been breathing a huge sigh of relief. The more clear scans she has further out, the better her prognosis.


Not too much else to report except that we only have ONE MORE round of chemo! Hopefully forever! I am so proud of this girl. She is definitely something special, I know God has big plans for her and I have so much faith in her.

Just being goofy with Mommy.

She was so cute playing peekaboo with all the nurses who were having their huddle right outside our door. She's definitely won the hearts of many around here and is so very loved.

100 days

It's been 100 days since Kade was diagnosed with cancer. Wow. 100 days of tests, scans, chemo, frustration, sickness, worry, exhaustion, and heartache. But it has also been 100 days of miracles, relief, learning, faith, changed hearts, gratitude, and hope. It's easy to focus on the bad and the hardships, but I also can't help but think of all the good that has come along with this trial. Kade is my little survivor! God's little warrior. So proud to call her mine.

We got to come home from the hospital last Monday. Yay! We are so happy to be home.

Kade did test positive for the CMV virus which can be pretty serious in immune deficient kids. Usually people with AIDS or an organ transplant get it. The risks are that it can become a disease which can affect your liver, kidneys, lungs, etc... So we are treating her pretty aggressively with twice a day infusions into her port with a medicine called ganciclovir. This is a harsh drug which also causes her counts to go down so we still have to be careful of infections and sickness. They taught us how to do the infusions at home. We are also giving her two shots a day with an anti clotting medicine since she had a clot in one of her ports. More stuff to do for us! We'll take it if it means her being home.

She is so much happier at home. I really do thinking her siblings are her best medicine. She just plays and laughs with them. We are off all her anti nausea meds and she is starting to eat a lot of normal food again! She's lost the strength to walk again but is starting to walk around the furniture so that is a good sign.

After this last scare in the ICU we were left a little nervous to continue with the intense chemo. We have a meeting set up with the care team to discuss all our options and the risks and positives of everything this Thursday. I'll let you know what we decide. We do have to wait for the ganciclovir treatment to be over and her counts to go back up before we can start another round of chemo anyways so I'm not sure what our timeline is yet.

Once again, we are so grateful for all your positive thoughts, energy, and prayers. Miracles are real and God is good. There is no doubt in my mind that He answers our prayers large or small. Please pray that we will make the right decision for her care going forward according to His plan. Love you all!