It's a great day!! Kade did it! She is done with chemo treatments! Hopefully forever. I am so proud of her and in awe of her strength throughout all of this. She is so strong and such a fighter. I can't beleive we are done with treatments! I know it was only 6 treatments and only 6 months but it was the longest 6 months of my life and pretty intense. We got to come home from the hospital last night! Only one night and two days in the hospital. Fastest stay ever!
She is pretty sick and miserable right now and I expect her to be that way for the next week or 2. As hard as it is to be home and do all the care myself it is SO much better. No more nurses waking us up every 4 hours for diaper changes and vitals, no more screaming at the top of her lungs getting her blood pressure, no more being constantly confined to the hospital room and hooked to all the tubes, no more poison being pumped into her little body... We will probably have to go back in to the hospital when her counts go down this weekend, but that will be to make her BETTER and give her the good stuff, not the poison. She will also get her stem cell transplant again this Wednesday. Time for a stinky creamed corn smelling baby for a few days. It goes away pretty quick though but man is it rancid.
The plan for the next month is the usual several lab appts to see how her counts recover, then she'll get an MRI, get her central line removed, do a hearing test, and we will wean her from her feeding tube (so that will probably stay in for a month or so). PRAYING that her MRI is still completely clear of any cancer and remains that way. We will pray so hard for that every time she gets scanned. The MRI isnt scheduled for another 3 weeks though. I cannot wait to get all these tubes out of her and be able to just give her a normal bath without covering the tubes with parafilm and covering her central line with press and seal and tape EVERY time (4 times a day right now after chemo).
I cannot wait to bring her to church with the family, and to the park and the store without worrying she is gonna catch something that could be deadly to her. Only a few more weeks and this will be a reality. I can't believe it. She is my little miracle and she did it. We all did it! We could not have done this without all the support you have all given us. Each and every one of you! I have felt your prayers, your love and support. I am so beyond grateful for all that you have done for us. THANK YOU! People are good and God is good. I have been forever changed by this experience. I hope to always see the good in life and in people and to never take anything for granted.
Life is so fleeting and so precious. I had so many mixed emotions this last week as I learned a friend of mine lost her baby girl due to some major health issues. My heart was so broken for them. Feeling so sad and partly guilty that my little girl is going to make it and she will thrive, yet at the same time feel so excited to be done with these treatments and so happy for her. Such mixed emotions. I don't understand God's plan and why these things happen but I will trust Him. Please pray for that sweet family as well as they are carrying such a heavy burden of greiving for the loss of their child.
Thank you all for taking this journey with me and being so supportive. I will continue to update on Kade's progress going forward but for now this chapter is closed and I could not be more THRILLED.
Psalms 28:7 "The Lord is my strength and my shield; my heart trusted in him, and I am helped: therefore my heart greatly rejoiceth; and with my song will I praise him. "
She is pretty sick and miserable right now and I expect her to be that way for the next week or 2. As hard as it is to be home and do all the care myself it is SO much better. No more nurses waking us up every 4 hours for diaper changes and vitals, no more screaming at the top of her lungs getting her blood pressure, no more being constantly confined to the hospital room and hooked to all the tubes, no more poison being pumped into her little body... We will probably have to go back in to the hospital when her counts go down this weekend, but that will be to make her BETTER and give her the good stuff, not the poison. She will also get her stem cell transplant again this Wednesday. Time for a stinky creamed corn smelling baby for a few days. It goes away pretty quick though but man is it rancid.
The plan for the next month is the usual several lab appts to see how her counts recover, then she'll get an MRI, get her central line removed, do a hearing test, and we will wean her from her feeding tube (so that will probably stay in for a month or so). PRAYING that her MRI is still completely clear of any cancer and remains that way. We will pray so hard for that every time she gets scanned. The MRI isnt scheduled for another 3 weeks though. I cannot wait to get all these tubes out of her and be able to just give her a normal bath without covering the tubes with parafilm and covering her central line with press and seal and tape EVERY time (4 times a day right now after chemo).
I cannot wait to bring her to church with the family, and to the park and the store without worrying she is gonna catch something that could be deadly to her. Only a few more weeks and this will be a reality. I can't believe it. She is my little miracle and she did it. We all did it! We could not have done this without all the support you have all given us. Each and every one of you! I have felt your prayers, your love and support. I am so beyond grateful for all that you have done for us. THANK YOU! People are good and God is good. I have been forever changed by this experience. I hope to always see the good in life and in people and to never take anything for granted.
Life is so fleeting and so precious. I had so many mixed emotions this last week as I learned a friend of mine lost her baby girl due to some major health issues. My heart was so broken for them. Feeling so sad and partly guilty that my little girl is going to make it and she will thrive, yet at the same time feel so excited to be done with these treatments and so happy for her. Such mixed emotions. I don't understand God's plan and why these things happen but I will trust Him. Please pray for that sweet family as well as they are carrying such a heavy burden of greiving for the loss of their child.
Thank you all for taking this journey with me and being so supportive. I will continue to update on Kade's progress going forward but for now this chapter is closed and I could not be more THRILLED.
Psalms 28:7 "The Lord is my strength and my shield; my heart trusted in him, and I am helped: therefore my heart greatly rejoiceth; and with my song will I praise him. "
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| Hiding in the sink... |
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| Hiding in the window cubby. |
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| ... and hiding in the corner behind her bed. Any place she could fit she would hide, then turn and laugh. |
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| Kade has such a strong bond with her Aunt Jadeyn who also had a brain tumor. Tumor buddies! |
