Kade is halfway through her treatment!! Round 3 went a lot better and quicker than the last two. We were in the hospital for 4 days and her nausea wasn't that bad up until recently. We were home for 5 days, then Saturday Kade started feeling feverish which is her trend when her counts go down. She was also not tolerating her feeds and throwing up a lot more. Sunday morning we had an appt for labs but I knew since she had a low grade fever all night we would probably be admitted depending in her ANC (white blood count). Sure enough she was at 0 and I could tell wasn't feeling good at all. We were admitted again yesterday for antibiotics. She also tested positive for rotavirus which is a GI virus so we are in Isolation and she has pretty bad diarrhea. The good news is that she had a blood transfusion and 2 platelet transfusions, and has also been give a lot of fluids and electrolytes as those were also very low. She was very dehydrated from throwing up so the extra fluids and blood helped her get her color back and feel much better. She's still a little pukey but is overall feeling a bit better. She's also gained some weight back. If she can keep her fevers down below 100 and her blood cultures come back negative for infection, then it should be a short stay of only a few days.
I'm so proud if her for making it halfway through these treatments! It's been a rough and rocky road, but we're over the hump, or I should say mountain!! (Fingers crossed!)
We have 3 more rounds but from what I hear, shouldn't be as tough.
I know this has been a trial for our family but it's brought us closer. I also feel very fortunate and blessed that things are not worse and that this is a rare but treatable cancer with a good prognosis because we removed her whole tumor. I've met and heard about so many children that have it A LOT worse than Kade and it breaks my heart. Kade is expected to come out on top after this which is a HUGE blessing. There was a family here next door during our last cycle of chemo and there were about 20 people in this little boys room for two days. Their little one was dying and they were all there to say goodbye. I don't know the details but I know they were an awesome and very close knit family and it gave me so many mixed emotions. I was so sad. So grateful things are not worse for us but so heartbroken for this other family. I am counting my blessings and choosing gratitude.
This past week Maizyns classroom Mom gave me a gift of a "get well soon" banner that her class made with each of the kids writing a note for her as well as some gift cards. I also was pleasantly surprised to receive a bundle of anonymous cards in the mail from complete strangers, and to have my friend bring me some care packages from other people I don't even know. Not to mention the MANy gifts, kind words, help and love from our friends, family, and loved ones. Beyond touched. People are good. God is good.
All we ask for are continued love and prayers, yet we still continue to receive so much support by way of anonymous gifts, donations, anonymous cards in the mail, meals, and many prayers and so much love. We are so grateful and always touched.
Kade's story
On March 17th our lives were changed and turned upside down. Our little Kade had a fall which lead to brain surgery, which then lead to finding a very large brain tumor. They were able to remove the tumor successfully with surgery and she has been recovering better than expected, however the pathology report came back as malignant. She was diagnosed with choroid plexus carcinoma brain cancer. This blog will be for everyone to track our journey through out the treatment process. We are so hopeful for our little girl and know she's a little fighter.
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