Normal life?

Sorry I haven't updated this in so long. It has been a very busy few weeks! We were in the hospital for a few days due to fevers and infection, but then came home last Thursday and have been home since. We finally had a normal week! ( minus various Dr. Appts ) There has been so much improvement in our little girl! She is crawling and playing and laughing. We haven't had fevers and have had minimal vomiting! She finally felt good and was her active little busy bee! It has been so great to have her back. It still comes with a lot of round the clock care with her meds and changing her caps and flushing her lines with heparin, also replacing her NG tube on average every other day because she either pukes it out or pulls it out herself... We've become pros. I'm actually considering nursing now. :) But even with all the work it entails, I am so happy to see her doing so well.

Kade also had an MRI done to scan her brain for any new tumors and her scan was clear! Yay! She also hasn't lost any of her hearing yet (which is a side affect of one of the chemotherapy) I'm so glad we are finally having good results and good news coming our way. Such a relief! It has been awesome to see her interact with her siblings like she used to. She loves giving hugs and kisses to everyone and is even starting to say some words again. I'm so proud of her. I can tell her brain thinks she can walk and do all the things she used to but when she tries to her body doesn't cooperate because it's not quite strong enough yet, it's frustrating to her. But I am so proud of her for trying and it's so encouraging that I know she'll be walking again soon. We head back in for Round 3 of Chemo tomorrow morning. This will be our last round of "baby boot camp" chemo (that's what he nurse practitioner called it). So she will be sick for about a week and her counts will go down again which may have us end up in the hospital again. However this is the last round of the super harsh chemo recipe. The next three rounds (4,5,and 6) are 4 weeks apart and we are only admitted for 2 days with only 2 types of chemo which shouldn't be as harsh on her little body. I'm looking at it as this is the last little climb and then we will be over the hill and starting to come down to the finish line. I am amazed how fast this has gone, but also how slow it's gone. I know that doesn't really make sense, but that's kind of the roller coaster we've been on. I know God has been walking this hard path with us and has helped us because as I look back I can't believe how I've been holding it together. It's been a hard two months! I'm so grateful for the friends, family and loved ones helping us along the way. I'm still so humbled by the love and generosity from not only loved ones, but also complete strangers. Thank you everyone. My little Kade is a fighter and I'm so proud of her! Wish us luck with this next round!