Kade's story

On March 17th our lives were changed and turned upside down. Our little Kade had a fall which lead to brain surgery, which then lead to finding a very large brain tumor. They were able to remove the tumor successfully with surgery and she has been recovering better than expected, however the pathology report came back as malignant. She was diagnosed with choroid plexus carcinoma brain cancer. This blog will be for everyone to track our journey through out the treatment process. We are so hopeful for our little girl and know she's a little fighter.

My beautiful girl

My beautiful girl

Saturday, June 14, 2014

ICU, we meet again...

So we are back in the ICU after a very eventful a long night. We came home from the hospital getting chemo on Tuesday night, then Kade has been pretty nauseous since then but she really got sick on Friday when we came to the clinic for labs. She couldn't keep anything down and was very lethargic. She started getting a fever and labs showed she was neutropenic. (Counts were at zero) so they decided to admit us. Since she has been throwing up so much they wanted to rule out shunt failure so we got a CT scan which showed her ventricles looked good, then they did a shunt tap, meaning theyput a large needle info her shunt site on her head to check pressure and pull some if the CSF (cerebral spinal fluid) to test for infection. Pressures looked good thank goodness and this morning that came back clear!! Good news because it means they ruled out meningitis. They have given her 4 boluses of fluids with still very little and very dark wet diapers. She also has pretty bad diarreah. They're really concerned because she was sooo dehydrated. About 11pm last night Kade spiked another fever up to 103 which caused her HR to go up to the 190s. They called in the high risk nurses from the ICU and had a team of 7 people monitoring her. After giving her IV Tylenol her fever came down a bit but only for about 2-3 hours then her fever spiked again with her being very shaky, vomiting, and really lethargic. They couldn't give her Tylenol again for a few more hours. Her HR was up to 210 and her oxygen started going down at one point so they put her on oxygen for a little while which seemed to help. This was pretty scary at this point. Eventually her oxygen levels improved. They decided to move us down to the ICU to get 1:1 care since our nurse in cancer care was with us the whole time and couldn't get to her other patients. Kade got a blood transfusion and a platelet transfusion as well. These have helped her resting heart rate come down to the 170s. That's still very high. Her fever has stayed around 101-102. So here we are. She's doing a lot better and has turned a corner but they are keeping a close watch because with cancer kids who are immune compromised things can change very fast. I'm tired, she's exhausted. I got about an hour of sleep in the chair holding her. They are still trying to figure out where her infection is and have her on 3 very strong antibiotics. Just pray that her body will respond to the meds and she will start feeling better. I think things are slowly improving. I will do an update when we know more. Love to you all! Pray for my girl so  her little body can fight this nasty  infection.

5 comments:

  1. Poor little thing. I truly can't imagine how you're coping with all this, Taryn. I hope she improves quickly, and drastically.

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  2. Prayers for Kade and Mommy. I'm so, so sorry. I hope you can get through this huge bump in the road. Thinking about you guys.

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  3. Got your back with the prayers! Dinner tonight at 6... probably pizza again. Haha Having in there, we love you!

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  4. Seriously, you guys are amazing. We love you so much! I'm so sorry to hear she has this infection. Will pray that it will be fought as soon as possible. The miracles won't stop.

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  5. You all always have my prayers and love you all so much.

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