Kade's story
On March 17th our lives were changed and turned upside down. Our little Kade had a fall which lead to brain surgery, which then lead to finding a very large brain tumor. They were able to remove the tumor successfully with surgery and she has been recovering better than expected, however the pathology report came back as malignant. She was diagnosed with choroid plexus carcinoma brain cancer. This blog will be for everyone to track our journey through out the treatment process. We are so hopeful for our little girl and know she's a little fighter.
My beautiful girl
Tuesday, June 17, 2014
Not getting better, Not getting worse
Kade is improving as of right now but we're not out of the woods. All of your prayers are working, but we will still continue to need more!! She had an ok night, better than the night before so we are holding on to hope that she is turning a corner. She did spike a fever early this morning and is still pretty miserable as far as pain. They put her on a morphine drip rather than giving breakthrough doses, hopefully that will help. She also got an X-ray of her stomach because its distended and they wanted to rule out constipation since her stool has mostly been watery. Apparently you can have diarrhea and constipation at the same time but it turns out she just has a lot of fluids and gas build up as well as bile. One of her lumens in her port is not pulling back so they think she has a clot and are only using the other one for meds and labs. This clot might also be causing her body to react like it has an infection there, although her blood cultures show that she doesn’t. She is very swollen because of all the fluids they have been pumping her with, they have cut back a little bit on that which should help with her swelling. She is now being treated for fungal medicine as well just to cover their bases. Not major improvements but not doing worse either. Her ANC (white blood cell counts) are still at 0. Since she had her stem cells put back in and a nulasta shot right after her last chemo the oncologists believe her counts should start recovering in the next few days which will help her improve a lot. They will also be able to take a CT scan to find out where the white blood cells are attacking. . Her labs still show that all of her organs are doing fine and are not in any distress. Dr. Geyer (the oncologist) was reassuring saying that he was not overly alarmed by what is happening and he is hopeful that once her counts recover she will start feeling much better. This was nice to hear because I have been so worried. This is scary because she could get worse so quickly, but she is strong and is a fighter. I have no doubt that she will come out on top. Continue to pray for her!! I beleive that God has a plan for this little girl, that has been shown already with all the lives she has touched. She is so brave and I'm so proud of her. Thank you everyone for all your love and support! I have read every message and looked at every like. I love each and every one of you.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment