Post Chemo.

Kade is slowly getting better everyday. The first few days at home were hard. Really hard. She was inconsolable. She was sick and therefore didn't even want to nurse. (Yes, I'm still nursing - we were in the process of weaning when this all happened) We gave her the prescribed anti-nausea meds and they seemed to help a little bit, but not enough. We had our first clinic appointment on Friday and our Nurse Practitioner told me to get her off the Steroid, she would be a lot happier. Apparently it makes her crazy moody. She also gave me a little bit different regimen with her medications, adding Lorazapan as one that she should take more frequently than the others. (We have about 8 prescriptions) The Lorazapan has helped so much.

She is doing a little better each day. She's got her ups and downs but is hanging in there. It was sad the first day we got home and she realized we were at home but her feeding tube and Hickman lines were still in. She kept trying to pull them out and I could tell was frustrated and confused as to why she had lines in when she wasn't in the hospital. I felt so bad. She's gotten used to them though and so have we. Clay and I have become pros with her feeds and her medicines. We also have to give her an injection every day (GCSF shot) which is supposed to help her Stem Cells release from the bone marrow and they are going to collect it before we go in for our next round of Chemo. Clay's really good at cleaning her lumens on her Hickman line and giving her the shot so I let him do it most of the time. At our clinic appointment on Friday we were told to expect Kade to get a fever this coming week as there is a 90% chance she'll get one and have to go into the ER. This is not anything we do wrong but her blood counts are going to plummet and her body wont even be able to fight its own bacteria which is why fevers are so common. I guess we'll see. She's been clear so far. 

One of our dear friends had their house cleaner come in and clean for us, which was awesome! We are so grateful. I feel like I'm nesting when I was pregnant because I just want to clean everything and everything to be perfect for Kade. I actually ordered an automatic Purell dispenser for anyone that walks in my house. :) Don't be offended if you come over and I make you germ free. It's for my little girl. I also ordered some doTERRA essential oils which are supposed to work wonders in many different ways. I'm excited to start using them..

Maizyn and Jax are still in AZ. We miss them SOOO much! They come home on Tuesday. They have been having the best time with their cousins, swimming in the pool and playing all day everyday. We've been facetiming with them and Kade gets so happy when she sees them. I know when they get home she will perk right up and slowly come back into herself. And by the time she's feeling good, she'll go in for round 2! Heart breaking! We actually are already scheduled for April 26th for round 2. 

I'm going to just enjoy these next few weeks and pray we don't have to be admitted for an infection or fever. The doctors said if she gets a fever we will most likely be admitted for 1-2 weeks to get antibiotics. I think we might just have to move right in for the next 6 months. But really, I am so happy that we are so close to Children's as we can actually come home in between treatments. They don't want us being further than an hour from the hospital until Chemo is completely done and her scans are all clear. We are counting our blessings that we live so close. 

I have to say that as hard as this has been, it's not as bad as I expected (yet). We're all hanging in there and trying to get on with normal life which is really nice. Fingers crossed and prayers that Miss Kade won't get an infection. Thanks again everyone. Love to all!