The first round of Chemo

Well, we are getting discharged from the Cancer care unit this evening. It's been quite an experience. My poor baby has been so sick. The first time the nurses came with the first dose of chemo, they had to wear what looked like Hazmat suits. This should tell you how toxic this stuff is. I cried. We have to wear gloves just to change her diaper. No wonder this kills cancer and completely kills your immune system. They have been giving her about 5 different types of chemo over the course of three days. I just keep wishing I could be the sick one, not her. When we go home she will still have her NG tube( feeding tube ) and her Hickman line ( the catheter put into her chest for her chemo and others meds and blood draws. ) We've been trained on homecare for these as we have to give her 5 feedings  a day and flush her Hickman lumens once a day. We also will have to give her a shot everyday for to help with her blood counts. SO SO so much information. The first day we got our "training"  I was so overwhelmed with all of it, but things have gotten better and I feel a lot more confident in all the things to look for when caring for her. It's going to be exhausting but will also be our new normal so I'm sure I'll get used to it. Children's has been great and we love all the nurses and docs here. We've also met some of the families. One family that was next door to us was a young couple with a 2 year old little girl. They've been going through this since December and had a lot of good advice for us. Basically telling us not to look too much at the numbers but to look at how Kade individually is going to fight this. Also saying that she will surprise us with how well she handles things. It was comforting to talk to them. I know I say this every post but it's true, I continue to be amazed by our support group. We have the best friends and family surrounding us and I know I couldn't handle this without all of you. There are angels among us, on both sides. I'm so grateful to my Heavenly Father for sending comfort in every form. I pray that he eases my little girls burden even more so.